Monday, March 9, 2009

An amazing family

I want to thank all of you that have let me know you will say prayers for baby Jonah. I have to tell you that I have been keeping up with Patrice's (Jonah's mommy) blog. Her and her husband Matt have an AMAZING strength. I have never met either one of them but wanted to share with you their journey.

Matt and Patrice lost baby Gabe last year at birth. They now think he may have had EB also. Baby Jonah was born with EB. I'm not sure if they have totally identified which form of EB he has yet. As I've stated in an earlier post There is no cure for EB. It is NOT something "he will outgrow" It is NOT an "allergy" Which is what we have heard many times since Jameson was born. Anyway I want this post to be about Jonah and his family.

Patrice and Matt have shown a remarkable amount of strength throughout this process of finding out more about EB and how to take care of Jonah. Her and Matt have a DEEP DEEP inner strenght called FAITH. Faith can move mountains, and maybe with time EB.

I have been following Patrice's blog for updates on Jonah and wanted to give you the opportunity to witness the positive energy this family exudes to everyone, how much love, support and prayers are being offered for them.

I believe in the power of prayer and hope you will continue to pray for this sweet, loving family. Patrice, Matt, Jonah- here is a big hug. MY family is keeping you in our prayers!


Pam said...

Her blog does tug at your heart! I hope only the best for her family.

Linda McClain said...

What an amazing journey. Thank you for helping us learn about this disease. I can't begin to imagine what this family must be going through.