Sunday, March 22, 2009

Zoo Fun

We ended spring break with a trip to the Waco Zoo. We had a blast. Took over 300 photos and I wanted to share some of my favorites with you. The first one is of all the kiddos before we entered the zoo. We couldn't believe the great shots we got of the giraffes (my personal favorites) These two were "best cuz's for the day! The tortoise fascinated the younger kids because of the size. And Jamie had a blast on the slide. We took a video but for some reason it did not turn out. So pictures will have to suffice until I do a layout. Which I've been requested to create a new Zoo paper for the event.

Monday, March 9, 2009

An amazing family

I want to thank all of you that have let me know you will say prayers for baby Jonah. I have to tell you that I have been keeping up with Patrice's (Jonah's mommy) blog. Her and her husband Matt have an AMAZING strength. I have never met either one of them but wanted to share with you their journey.

Matt and Patrice lost baby Gabe last year at birth. They now think he may have had EB also. Baby Jonah was born with EB. I'm not sure if they have totally identified which form of EB he has yet. As I've stated in an earlier post There is no cure for EB. It is NOT something "he will outgrow" It is NOT an "allergy" Which is what we have heard many times since Jameson was born. Anyway I want this post to be about Jonah and his family.

Patrice and Matt have shown a remarkable amount of strength throughout this process of finding out more about EB and how to take care of Jonah. Her and Matt have a DEEP DEEP inner strenght called FAITH. Faith can move mountains, and maybe with time EB.

I have been following Patrice's blog for updates on Jonah and wanted to give you the opportunity to witness the positive energy this family exudes to everyone, how much love, support and prayers are being offered for them.

I believe in the power of prayer and hope you will continue to pray for this sweet, loving family. Patrice, Matt, Jonah- here is a big hug. MY family is keeping you in our prayers!

Sunday, March 1, 2009

Prayers needed

Most of you know that my youngest grandson Jameson has a rare skin disease called Epidermolysis Bullosa (EB). EB is a pretty rare disease that affects about 1 in 40,000 births. There is no cure at this time. Research is pretty scarce and more is needed. We were told when Jamie was born that most Doctors and nurses will NEVER see a case of EB in their entire CAREER! So anytime there is a case it is up to the family to EDUCATE all of the caregivers. Imagine being told that when you have a newborn. It has been true. We have had to "teach" (if you will) each one of Jamie's caregivers as to the correct way to treat him.

We just found out a friend of a friend had a baby boy named Jonah who has EB. Jonah is having a rough time and him and his family need some extra prayers. Please take time to say a prayer for this precious boy.

For those of you interested to learn more about this devastating disease you can go to the website.